Neuro visit today

A while back [it was either in march,may or april],am had to stay in hospital for a two night EEG test stay,and spoke on here later on,when staff got the results letter he sent to the GP,which stated it had showed part of the brain [right mid temporal] as abnormal during some meltdowns.

Today was the follow up appointment with Dr Rog,the best neuro they've got at hope hospital.
Am went with Dawn [from NAS],Neil [other support worker] and Anna [disability nurse].
When am got to the neuro part [that hospital is very very big on many different floors,and like a maze],it was overload from the people noise-a nurse said am and the staff could go in one of the doctors offices whilst waiting for the doctor,am thought that was great they offered that,though when am had to be an inpatient there am got nothing but nice treatment there to.

Dr Rog said that am definitely having full seizures during meltdowns-that was what the abnormality is-but not in all of them.
He said some of them are not epilepsy based/seizures,and classed those ones under [behavioral] meltdowns, though understands am do not have any control and often no awareness in them.

He also said migraines could be making the sensory problems worse,as am get a lot of them from meltdowns and headbanging,but staff gave him the idea that the migraines were random,rather than mostly happening after the meltdowns,head banging etc.
So he's adding Amytriptilyne? [not sure if spelt that right] onto the drugs pile,and he has got the staff some forms to fill in which type of meltdown it was,if it was a seizure,if am rocking 'normally' etc.

Am found out during the appointment thingy from staff who had all the daily reports and ABCs,am have had ten meltdowns this week [from tuesday to friday,as came back from parents on tuesday] but they're not sure why.............am know why,the noise has increased around living in this home -with three neighbours next to the home all deciding to knock down part of their houses and redo them-angle grinders,saws,lots of other different tools-from morning till night,weeks on end,the lady down stairs banging her draws and wardrobe-from morning till night,the CPer downstairs-playing his music on full volume/full bass,Marie up here shouting and banging every day again,how anyone could miss those easy setoffs,even deaf people?

Am also going to be getting a few more 'goodies' off the OT thanks to him,which will help life a lot.

Am glad they have finally made the epilepsy official,as am have been told-on off for years,it is epilepsy,it isn't epilepsy,it is epilepsy.....it was only because am had the long stay in hospital am managed to get diagnosed,as those short EEG tests are shit-they only work if happen to have a meltdown then,and am definitely not going to be having one whilst sat on a chair,in a nice,very quiet slightly darkened room.