Finally got the first look at the new custom made padding for bedroom today,it has been in the making since early december.
The OT and designer came with it,to see how it fits,but part of it was too long so it's had to go back for a slight change.
They have to drill hooks [?] along the walls so the velco strips can be put through and then attached to the bed so am do not fall down in a meltdown and it protects from head banging as well.
The colour is great,had chose it from a book of samples the designer had,it's a purple check [?] design.
He said the cover can be taken off and washed easily,but that they had designed it around hospital/metal style bed [am not allowed the metal type because of injury from meltdowns] and need to change some of the loops so they wrap around such a wide wooden plank bed.
It looks so much better than the current protection that is used now,as it's been used for years-and is falling apart [a special mattress,and loads of pillows].
They are arranging a date for next week to come,will be out whilst all the banging and drilling is going on.
Will put a photo of it on here when it's all finished,it will be far easier on eyes than the bright red padding already.
Monday, 10 March 2008
Laptop
Not very Autism related,but am going to be off the internet for some days again [last time it was a few weeks],as am bringing back laptop to PC world tomorrow/tuesday.
Bought it last week,it's a crappy Advent laptop,feels cheap and nasty,looks cheap and nasty,it's got one dead pixel in a very obvious part of the screen,the space bar is almost knackered [it sticks], and the battery does not hold any charge at all.
Had only bought it because had been desperate to get back on internet and they were all out of every other laptop that could afford.
But PC world are delivering the original toshiba one am wanted [there had been six available on wednesday,on thursday when went down with money,they said there was none left] as there is one left in another store and the offer on it ends tomorrow.
No idea how long it's going to take to sort it all out,don't know whether will be getting the laptop this week before going to family home at weekend or not,so will be without main communicative source until at least later this week .
The acer travelmate [that got its motherboard damaged in a meltdown] is having its memory taken out and put into the new laptop [if slots are available],and the techy is buying the rest of it off am.
New laptop will have extra insurance taken out,as well as being under the homes' insurance for extra safety,so if it gets in way of a meltdown again,it can be fixed or replaced easier.
Bought it last week,it's a crappy Advent laptop,feels cheap and nasty,looks cheap and nasty,it's got one dead pixel in a very obvious part of the screen,the space bar is almost knackered [it sticks], and the battery does not hold any charge at all.
Had only bought it because had been desperate to get back on internet and they were all out of every other laptop that could afford.
But PC world are delivering the original toshiba one am wanted [there had been six available on wednesday,on thursday when went down with money,they said there was none left] as there is one left in another store and the offer on it ends tomorrow.
No idea how long it's going to take to sort it all out,don't know whether will be getting the laptop this week before going to family home at weekend or not,so will be without main communicative source until at least later this week .
The acer travelmate [that got its motherboard damaged in a meltdown] is having its memory taken out and put into the new laptop [if slots are available],and the techy is buying the rest of it off am.
New laptop will have extra insurance taken out,as well as being under the homes' insurance for extra safety,so if it gets in way of a meltdown again,it can be fixed or replaced easier.
Motability car
Have found out today that am finally going to be getting very own car [from the Motability scheme] around end of April,for those who do not have in own country or do not know of this service,motability cars can be applied for if have severe need for own transport,the person also needs to be recieving high rate mobility component of DLA.
Am have been told for a long time that the mobility component covers all the taxis am need so do not need a motability car,which is rubbish because it does not cover near enough.
So the home and service managers have finally listened to staff and are sorting it out [Mark who lives here recently got one,which was wheel chair adapted for his manual chair,but it doesn't have enough space] .
It's the best news have heard in a long time,am will finally get at least some quality of life with a car and staff will not have to argue with drivers to turn off radios anymore because it won't be a taxi,am will be able to go to parks,countryside and shops for food that doesn't use up money too quick as there is only one little shop here now that am able to cope with going in,it's all stuff many people treat as easy everyday things,but am have been unable to access.
The car will be insuranced to all staff,it would be nice if it could insuranced to anyone as then Rach or Chris could drive it to.
Am have asked for a Ford Focus as it's the car am used to rent a lot through the council with another Autie to go to parks,and like the shape of it a lot,but staff have said it all depends on how much money it is.
Am getting the motability car based on all non physical/mobility disabilities [although am do have a mild CP like impairment in left leg,it's nothing in comparison and it isn't on any DLA or income support forms] ,which should be proof enough that adult Auties [and possibly Aspies,at least should be because DLA isn't supposed to be judged on label] can get motability cars without actually having a physical mobility related disability.
Am recommend applying for one if have high rate DLA and severe complex needs as a result of own disability [whether it's Autism,Aspergers,whatever]-get citizens advice or the NAS' new help service to sort it out.
It can give back some quality of life!
Am have been told for a long time that the mobility component covers all the taxis am need so do not need a motability car,which is rubbish because it does not cover near enough.
So the home and service managers have finally listened to staff and are sorting it out [Mark who lives here recently got one,which was wheel chair adapted for his manual chair,but it doesn't have enough space] .
It's the best news have heard in a long time,am will finally get at least some quality of life with a car and staff will not have to argue with drivers to turn off radios anymore because it won't be a taxi,am will be able to go to parks,countryside and shops for food that doesn't use up money too quick as there is only one little shop here now that am able to cope with going in,it's all stuff many people treat as easy everyday things,but am have been unable to access.
The car will be insuranced to all staff,it would be nice if it could insuranced to anyone as then Rach or Chris could drive it to.
Am have asked for a Ford Focus as it's the car am used to rent a lot through the council with another Autie to go to parks,and like the shape of it a lot,but staff have said it all depends on how much money it is.
Am getting the motability car based on all non physical/mobility disabilities [although am do have a mild CP like impairment in left leg,it's nothing in comparison and it isn't on any DLA or income support forms] ,which should be proof enough that adult Auties [and possibly Aspies,at least should be because DLA isn't supposed to be judged on label] can get motability cars without actually having a physical mobility related disability.
Am recommend applying for one if have high rate DLA and severe complex needs as a result of own disability [whether it's Autism,Aspergers,whatever]-get citizens advice or the NAS' new help service to sort it out.
It can give back some quality of life!
Sunday, 9 March 2008
Sister training
Last week/this week [not sure what to call it], sister went to London with some other staff from her work [as drugs councilors for Phoenix Futures] to do training on aggression,and the specialist who was doing it [not sure what type he was as she did not say] turned out to specialize in Autism.
Sister said she spoke to him in a break about Autism and talked about am for a while,he said what am had was called 'explosive autism'.
She said they then got onto the subject of both Leo Kanner and Hans Aspergers' work,then the autism spectrum and he said both Autism and Aspergers are seperated by very little in criteria and are really the same thing.
He actually said a lot more than that in better detail but sister couldn't remember anymore,she said it was very interesting,will text her for the specialists' name next week when phone has credit on it.
Have never heard the term 'explosive autism' before,has anyone else heard of it?
Sister said she spoke to him in a break about Autism and talked about am for a while,he said what am had was called 'explosive autism'.
She said they then got onto the subject of both Leo Kanner and Hans Aspergers' work,then the autism spectrum and he said both Autism and Aspergers are seperated by very little in criteria and are really the same thing.
He actually said a lot more than that in better detail but sister couldn't remember anymore,she said it was very interesting,will text her for the specialists' name next week when phone has credit on it.
Have never heard the term 'explosive autism' before,has anyone else heard of it?
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