Meltdowns and shutdowns-under EEG

Back in april,am stayed in hope hospital for another EEG only this time it was two nights/three days long and they were going to induce what they called 'attacks' as the neuro didnt want to use any terms that hadn't been medicalised yet.
Am had a mobile EEG box strapped to am,and a load of nasty wires and glue.
During the first 'attack' aka meltdown and shutdown,it was so severe it ripped off all the glued and taped down electrodes and pulled away scalp with it,it happened so quick,the machine was not able to read a lot of it,during the second MD/SD,it had happened that night without any electrodes attached as the neuro had gone home for the night.
During the third MD/SD,there were some electrodes attached.

It is an experience to forget,but the results of the EEG came this week.
The neuro has sent the staff a copy of the letter that they have sent to the doctor so it is all in doctor speak,but am took a photo of the letter and gave it to sister over MSN [who knows about this stuff due to her job].
The Neuro said on the bottom of the letter: "the conclusions were that the EEG was abnormal showing focal slow waves and some sharp waves over the right mid anterior temporal area."
Sister said the right mid anterior temporal area was around the ear/just above,and that part controls hearing,speech and other things [forget the rest].

Am have an appointment coming up with the neuro about the results and medication stuff,though just from the little bit sister said,am think it is great that an EEG could pick that up and know exactly where it was.
And am hoping am finally will be able to get some decent meds added,to numb the senses and to reduce meltdowns,it is very bad how in the UK,have to fight to get even melatonin when have severe sleep problems and they are able to prescribe it yet choose not to,yet in america,drugs can be prescribed and got so easily.
The LD CPN am have is coming with am and keyworker to the neuro appointment so that should be even more backup,but the neuro is probably one of the most understanding.



It would be great? to see what results others have whilst having MDs/SDs under EEG.

GFB awareness week

Am have decided to make it GFB awareness week here,as today was the first time in ages am have been able to be with him due to the extra meltdowns everyday,and also because he has been put on a special diet by his family and their vet-so the only thing left that he really likes is awareness of him and attention,if he isnt getting it,he will shout for it,and when hes getting it,he will dribble all over,and then suck the wettest spot.

he likes tight hugs,belly rubs,head stroking,lying down on the path with him so he can get close,dribbling etc.
he also likes to fart and clean his bum a lot unlike other cats,he likes to spray wee on things to but he gets a lot of splash back and ends up getting it on his furr,it smells like dads aftershave.

he has a girlfriend called Smudge,she lives here although in a different unit,she is a old lady cat but doesnt look it,she is a tortie and white,she acts like a kitten and can jump high,she will only eat one type of cat food and one flavour,she didn't like GFB for a long time but she likes him now,she lets him eat her dinner if he sneaks in.

GFB gets a lot of calls for fights off other toms,they will come and scream at him right in his face,and he will just sit there and do nothing,he doesn't fight or attack at all.

here is the most recent photos of him [taken tonight] and to answer any questions-no he's not on 'nip, no,he's not available and yes,he welcomes dinner dates [minus the cat though,just the dinner]:
GFB sat on knee




GFB dancing on knee,slowly sliding off

So if anyone would like to do am a favour and leave nice messages for him whether in english or cat,please do here and am will make sure he sees them.
he could reply himself,but itd only be 'FFFFFFFFFFFFFFFFFFGGGGGGGGGGHHHHHHHHJJJJJJJKKKKKK....',typing and most human language is not his thing.

National Autistic Society-outreach support staff

Am finally have staff from the NAS!
the lady works in the NAS' residential homes but also does the out reach support where she comes into other residential homes or peoples own homes and supports them.
She is very very nice,she is coming every monday until am have got her into routine,then it will be twice a week.
She also has the use of the national autistic societies' own car to take am anywhere am want,
which will be good until am get own motability car.
She is very understanding and instantly understood am,where am have known staff in the learning disability service for years and they still treat am like shit because of their selective ignorance [or selective stupidity,dont know which].

Am have been told by some staff that she is training the staff here on how to treat,work and cope with am [as all the autism specialists have left the LD service and none have replaced them yet].
Though am cannot see that working because the worst staff here did not listen to autism specialists before and they carried on being the abusive ignorant bastards that they are.

Anyway,she is very nice,she treats everyone on the autism spectrum as individuals and does not see the stereotypes,and thinks how am have been treated by LD staff over the years is disgusting.

The NAS are great!

It's official-the council are crapper than crap

Some might think this council/borough is great,some might think it's awesome.
These are humans who have not yet experienced their support and care services.

Trafford council has been running up a care bill debt for am since am lived in the institution,
and they have not been taking the money.
They have now just said [this is after it becoming a huge debt,thats what home staff and one of the council has said anyway] the reason its getting worse is because am do not go in post offices for it to get paid-for one thing,it should not matter as staff who are going are supposed to take the stuff,
and another thing,am cannot cope with post offices for both sensory reasons and the long cues.
The blame is being put on am,when they have never mentioned it.
They said they are trying to set up a 'direct debit' account now,bit late isn't it.

They really are bad.
They said this is the reason am do not have the motability car [a ford focus] yet,because they are trying to get the debt paid off.
What right have they got taking the disability benefits am get and putting it towards the debt they caused? DLA is supposed to be used for disability needs only and debt that was caused by someone else is not one of them.
They are making a poor quality of life even poorer by not getting am the car yet,am would like to see them have to stay inside day in day out and still be affected inside [cant go outside,cant stay inside,it's not nice].