The staff took am to the doctor yesterday to find out about getting medication for bonfire season [it used to be bonfire night,but bastards set off fireworks from august till about february at any time of the day/night] ,and other stuff.
The staff there give a spare private room to stay in whilst waiting for appointment.
Neil [one of the home staff team] was also speaking to the doctor about every single diagnosis am have [including health ones like migraine and TN]-needing it written down officially by the doctor to put into the files at home,the doctor didn't write the letter,but was speaking into this little black thing,he started with 'severe autism',he then got onto the subject of IQ score with Neil-[seventy four], he went through the rest-apart from severe tonic clonic epilepsy because Dr Rog had not sent him a letter with the final results yet to say what the diagnosis was,-Neil is waiting for the letter so he can get the other one,but it also means having to wait for new medication,because the doctor won't prescribe it until he's seen the letter.
As for the medication for bonfire season,he is going to prescribe vallium for two weeks around bonfire night,he said any longer and its too addictive,he also said to try a herbal drug called Kalms but am not allowed to have medication that hasnt been prescribed by a doctor,staff have to have them listed on MAR sheets,and the doctor said they don't prescribe herbal stuff.
Don't want to do yet another bacardi breezer plus co codomol combo mix again this year.
Tuesday, 23 September 2008
Sunday, 21 September 2008
Change? the vermin to autism
Over the past week has been one big meltdown and seizure festival.
Am found out one of the waking night staff am have had suddenly left and gone back to her own country-with no warning because her working pass had run out-and they never told am till she was due on-that change was bad enough-to find her replaced with staff am did not know....?
Am ran off-or as the staff call it 'absconded' and hid behind a transit van on some dark road-sat down speed rocking,am had no idea had not put the bottle of bacardi breezer [the small one] down -had just started drinking it before being told what had happened,is supposed to be illegal or so had thought.
Someone came over to am from their house and asked if am was ok,which home am was from,name... he phoned police and they came out-am had no idea what was going on until a extreme bright light was shon into eyes-and the police then set about trying to persuade am to go with them,they didnt care that was holding opened alcohol.
am went with them as the night time meds had kicked in,and couldn't be bothered with anything,so they drove am home.
One of the managers was there and he held onto am to walk am upstairs,he said it's ok he understands,am not in trouble etc.
He then explained what had happened with the staff,and to try and give the new lady a go-am found out she had been day staff with am before but because of the change at the time [had also been another quick change] and also being an agency staff [they're not allowed to work with am apart from as waking night staff,but this home tries to get away with anything],am had got in state,attacked her and self over it so she wasn't there for long.
Last sunday,am had also ran away from staff again,and was brought back by police.
And last friday,am find out-not even the smallest bit of warning [not that it would have helped but still] that the manager had not put a regular staff on-well no,will rephrase that-she had not put a regular staff on that am new-every one of them was new,am had never even interacted with them before-and so it begins......
Unfortunately,the NAS staff am have on a friday-who said she was just about to finish at the time-got a lot of it.
Am got into usual state,started smashing up room,everything that wasnt screwed down was throwable,everytime staff tried to come in,am hit back with stuff.
Am locked the bedroom door [they have a unlockable from the outside lock on the door because of what am like with them-though am had snapped the flat blunt knife they used to unlock it to try and get something to cut self with after sensory seeking a while ago] and trashed the draws in the desk,and squashed under it-so was up against the wall,am started head banging on the wall-out of trying to communicate rather than meltdown,by the time the staff and managers managed to finally get in,and restrained am-the wall had been headbanging on was almost completely splattered in blood,haven't seen as much blood before,is not something am bothered by,neither does the head banging hurt though do get post headbanging vibrating migraines in head along with tinitus-the cocodomol helps with that.
The Manager brought am to mums that evening because of the staffing problems,so got to theirs one day early,dad had locked the front room so wasn't able to turn the router on till he got back at night,couldn't be bothered in the end.
Throughout this whole 'festival',every day had been suffering from the usual multiple severe meltdowns-partly because of the constant banging and shouting caused by Jeanne-who bangs all of her doors in her bedroom from the moment she wakes up till the moment she goes to bed [and then gets up again to destroy the only bit of recovery time am have in a day] and daily tonic clonic seizures as a result-Jeanne should be in a nursing home because she has Alzheimers-she is closer to the advanced end of it and her needs are unsuitable in a home for LD,but they wont move her from here because she's been here for years-this is the same excuse they gave for not moving Jane from the previous home,despite the hell she put am,and the other residents through-yet they are quick to move am around when they know it's the last thing they should do,they are complete shit.
Am found out one of the waking night staff am have had suddenly left and gone back to her own country-with no warning because her working pass had run out-and they never told am till she was due on-that change was bad enough-to find her replaced with staff am did not know....?
Am ran off-or as the staff call it 'absconded' and hid behind a transit van on some dark road-sat down speed rocking,am had no idea had not put the bottle of bacardi breezer [the small one] down -had just started drinking it before being told what had happened,is supposed to be illegal or so had thought.
Someone came over to am from their house and asked if am was ok,which home am was from,name... he phoned police and they came out-am had no idea what was going on until a extreme bright light was shon into eyes-and the police then set about trying to persuade am to go with them,they didnt care that was holding opened alcohol.
am went with them as the night time meds had kicked in,and couldn't be bothered with anything,so they drove am home.
One of the managers was there and he held onto am to walk am upstairs,he said it's ok he understands,am not in trouble etc.
He then explained what had happened with the staff,and to try and give the new lady a go-am found out she had been day staff with am before but because of the change at the time [had also been another quick change] and also being an agency staff [they're not allowed to work with am apart from as waking night staff,but this home tries to get away with anything],am had got in state,attacked her and self over it so she wasn't there for long.
Last sunday,am had also ran away from staff again,and was brought back by police.
And last friday,am find out-not even the smallest bit of warning [not that it would have helped but still] that the manager had not put a regular staff on-well no,will rephrase that-she had not put a regular staff on that am new-every one of them was new,am had never even interacted with them before-and so it begins......
Unfortunately,the NAS staff am have on a friday-who said she was just about to finish at the time-got a lot of it.
Am got into usual state,started smashing up room,everything that wasnt screwed down was throwable,everytime staff tried to come in,am hit back with stuff.
Am locked the bedroom door [they have a unlockable from the outside lock on the door because of what am like with them-though am had snapped the flat blunt knife they used to unlock it to try and get something to cut self with after sensory seeking a while ago] and trashed the draws in the desk,and squashed under it-so was up against the wall,am started head banging on the wall-out of trying to communicate rather than meltdown,by the time the staff and managers managed to finally get in,and restrained am-the wall had been headbanging on was almost completely splattered in blood,haven't seen as much blood before,is not something am bothered by,neither does the head banging hurt though do get post headbanging vibrating migraines in head along with tinitus-the cocodomol helps with that.
The Manager brought am to mums that evening because of the staffing problems,so got to theirs one day early,dad had locked the front room so wasn't able to turn the router on till he got back at night,couldn't be bothered in the end.
Throughout this whole 'festival',every day had been suffering from the usual multiple severe meltdowns-partly because of the constant banging and shouting caused by Jeanne-who bangs all of her doors in her bedroom from the moment she wakes up till the moment she goes to bed [and then gets up again to destroy the only bit of recovery time am have in a day] and daily tonic clonic seizures as a result-Jeanne should be in a nursing home because she has Alzheimers-she is closer to the advanced end of it and her needs are unsuitable in a home for LD,but they wont move her from here because she's been here for years-this is the same excuse they gave for not moving Jane from the previous home,despite the hell she put am,and the other residents through-yet they are quick to move am around when they know it's the last thing they should do,they are complete shit.
FE College
This is something that has got am thinking again,because am failed it the last time around,and have had 'regressions' since the ASDAN life skills course a few years ago,which has completely destroyed everything am learned.
Am thinking of going to a special college,am cannot do the disability courses [courses for people with disabilities] at North trafford college because they cannot cope with the needs am have,and South Trafford-have done their disability courses before-they have less teenagers in ST than NT so there is not the shouty surroundings like with NT,but am not allowed to repeat any courses even though it is like have never done them-they have got rid of the courses am could have done because of losing the funding.
Have been looking at Bridge college and David Lewis college amongst others-as am meet the disabilities criteria,but not sure about age limits on them yet,am going to show Dawn this tomorrow,but won't be doing anything until have been able to move,settle into the new home and have got the motability car.
They usually only give funding for a special college place if local colleges are unsuitable for whatever reason, so given that have tried the local ones-with no success,hope would get it,it is difficult getting funding for anything as it is.
Am thinking of going to a special college,am cannot do the disability courses [courses for people with disabilities] at North trafford college because they cannot cope with the needs am have,and South Trafford-have done their disability courses before-they have less teenagers in ST than NT so there is not the shouty surroundings like with NT,but am not allowed to repeat any courses even though it is like have never done them-they have got rid of the courses am could have done because of losing the funding.
Have been looking at Bridge college and David Lewis college amongst others-as am meet the disabilities criteria,but not sure about age limits on them yet,am going to show Dawn this tomorrow,but won't be doing anything until have been able to move,settle into the new home and have got the motability car.
They usually only give funding for a special college place if local colleges are unsuitable for whatever reason, so given that have tried the local ones-with no success,hope would get it,it is difficult getting funding for anything as it is.
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