Friday, 23 January 2009

Will sensory difficulties ever be taken seriously

One support staff who am have known for years through the shawe road institution and present-has never got on well with am,or understood am-especially when it comes to the sensory difficulties,and more so especially when it comes to the hearing side.
Just now [the reason for this post] she came in and said, am lazy and have to start getting out more without a car to exercise,and that am not allowed to go in the car to the bank with the NAS staff anymore.

Can anyone who is reading this see the faults in:
Expecting an autie who is severely affected in sensory difficulties [so much,is actually housebound by the hearing side of it most days] to walk through one of the most crippling and sensory torturous parts of manchester-becoming extremely fatigued,visually impaired from the sensory scrambling and often falling to the floor in a meltdown-all from walking down one road?
Can someone please explain how wanting to avoid this agony is being lazy?

She said am need to go on public transport again to stop relieing on a car which had been one of the biggest tortures for am-meltdowned and self injured everytime am used to go on the bus/ring and ride,and family and support workers also got abuse for not 'disciplining their child'.

she assumes because am used to go on it when lived at the kenwood residential[but misses out the important part-was not able to cope with it,why should getting dragged off the bus in a frothing at the mouth state by support staff be treated like its ok to force?] am faking the need for a car,and am just being a lazy bastard.
the support staff who has said this is a right fat bastard who gets the car everywhere,right,am just being lazy-the concrete head banging and severe tonic clonic seizure in front of them are just a way of saying am a lazy bastard..yeah,whatever they say,idiots.

She like many staff dont seem to realise either,the hyperacusis am have got worse and is diagnosed at profound level,she and the rest of the ignorant ones say 'her hearing didnt used to be as bad as that' and say am faking hearing,even though a hearing test a few years ago showed hearing was even higher than what hospital software could test up to.
The NAS support staff who come here have given all the home staff info on hyperacusis because this is a comorbid of autism,which clearly states it can get worse coming into adult age which is the exact pattern that happened to am.....but of course,they're going to ignore the experts and believe their stupid shitty gossip.
They're fucking morons.

So how many other autists have had the same sort of problem-not having sensory problems taken seriously by ignorants? what is everyone elses stories on this?


If only everyone knew what the reality of living with the extreme opposite of deafness was like.
If only autism awareness courses for support staff and whoever did a lot more on the sensory side.
Am so fed up of constant sensory attacks with living in such an unsuitable residential and area-all because the service managers didn't understand the sensory side either and put am in the noisest home in the service.