am getting really fed up of trying to communicate experiences of pain across to people.
as with the previous post written,the past few days have had very severe acid reflux and heart burn that was bad enough to present like a heart attack and had been in hospital as well as back to the NHS walk in centre yesterday to finaly get prescribed omaprazole.
whilst in the hospital,was shown a symbol based pain chart by the nurses and asked to point to the one am at in terms of level of pain,and was one step below the highest,she was like 'REALLY?, are you sure? its more like this level,not that level...bla bla bla', no amount of insisting worked and got really pissed off with her.
the problem is,am unable to communicate pain in any manner to other people,am unable to translate it into language let alone have the natural inbuilt prompting to tell others.
it doesnt show physicaly either and am not sat there shouting,the only way it shows in self is through severe challenging behavior when it gets extreme but that is always blamed on the disabilities and not pain.
am in constant pain due to the nerves injury in the lumbar region of the spine,have severe headaches throughout the day caused by sensory & information overload as well as head banging and none of this is recognised as real pain,people think am taking the piss because it doesnt show in a stereotypical way and this is why had ended up with the label 'addict' tagged onto NHS records thanks to a consultant having no fucking clue why am using pain killers every day despite being told by a specialist of mine and support staff who see self every day.
these painkillers dont even begin to cover the pain am in,theyre a very mild level of kapake co codamol and can only take six a day.
am fed up of being in pain and people not taking it seriously because am not writhing around shouting ow.
Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts
Wednesday, 16 July 2014
Friday, 21 March 2014
the consequences of poor restraining
am suffering badly from severe back pain ever since the rough restraining from the police last september and held in that position for twenty hours in hospital whilst fighting against it and the hand cuffs and leg cuffs.
plus also the daily restraining had suffered at greenways,where was thrown the floor,pinned down,sat on top of,had knees pushed into rib cage so coudnt breathe properly and had injured arm twisted behind back in a pressure point hold.
however do not personaly hold them responsible they were just doing their job,its the consultant who completely removed the painkillers of mine without any knowledge of personal circumstances and disabilities-without any gradual step down,he just removed them completely-a coworker of theirs who was willing to speak out against him said they shoud never have done it,this is what has fucked life up so much since then.
its severe pain which shoots up spine constantly,and have got strong tingling 'pins and needles' running up and down legs,plus the worst pain is in lower part of spine.
am unable to feel legs at all,and was at a GP appointment the other day about back when was laid down on the bed and told to close eyes and show her when was able to feel what she was using.
she was using a cotton wool pad thing,and a scratchy needle instrument.
was unable to feel either of them.
she said the area affected is the L1-L5 region of the spine,and that nerves in that area have been damaged by the restraining causing the effects of being unable to feel legs anymore,falling over them, the pins and needles and the shooting pains.
was booked in for an MRI scan there and then by the doctor on online, and the LD team are going to be sorting out sedation with the docs.
meanwhile,have not been given any painkillers to help deal with back pain, am on naproxen [a strong form of ibuprofren] for a severe mouth infection and teeth problems but that doesnt help with the back problem at all and am in fucking agony every day,it has affected mental health greatly and have even been suicidal because of it.
am going to be taking legal action against the consultant who removed the opiate based painkillers as it shoud have never been removed without a gradual step down-they shoudnt have even been removed as am in severe pain every day and had been entire life due to the acute headaches from sensory and information overload-however had only been on codeine for four years,but they ignored this part and blamed it on being addicted to codeine,they also said autism cant cause headaches,felt like smacking them one,they honestly havent got a clue what it feels like.
his actions have caused the loss of a residential home placement,severe mental illness and was part of why was sectioned for four months,acute ongoing mental and physical problems for self and am not going to ever learn to move on until have got justice and closure on this.
plus also the daily restraining had suffered at greenways,where was thrown the floor,pinned down,sat on top of,had knees pushed into rib cage so coudnt breathe properly and had injured arm twisted behind back in a pressure point hold.
however do not personaly hold them responsible they were just doing their job,its the consultant who completely removed the painkillers of mine without any knowledge of personal circumstances and disabilities-without any gradual step down,he just removed them completely-a coworker of theirs who was willing to speak out against him said they shoud never have done it,this is what has fucked life up so much since then.
its severe pain which shoots up spine constantly,and have got strong tingling 'pins and needles' running up and down legs,plus the worst pain is in lower part of spine.
am unable to feel legs at all,and was at a GP appointment the other day about back when was laid down on the bed and told to close eyes and show her when was able to feel what she was using.
she was using a cotton wool pad thing,and a scratchy needle instrument.
was unable to feel either of them.
she said the area affected is the L1-L5 region of the spine,and that nerves in that area have been damaged by the restraining causing the effects of being unable to feel legs anymore,falling over them, the pins and needles and the shooting pains.
was booked in for an MRI scan there and then by the doctor on online, and the LD team are going to be sorting out sedation with the docs.
meanwhile,have not been given any painkillers to help deal with back pain, am on naproxen [a strong form of ibuprofren] for a severe mouth infection and teeth problems but that doesnt help with the back problem at all and am in fucking agony every day,it has affected mental health greatly and have even been suicidal because of it.
am going to be taking legal action against the consultant who removed the opiate based painkillers as it shoud have never been removed without a gradual step down-they shoudnt have even been removed as am in severe pain every day and had been entire life due to the acute headaches from sensory and information overload-however had only been on codeine for four years,but they ignored this part and blamed it on being addicted to codeine,they also said autism cant cause headaches,felt like smacking them one,they honestly havent got a clue what it feels like.
his actions have caused the loss of a residential home placement,severe mental illness and was part of why was sectioned for four months,acute ongoing mental and physical problems for self and am not going to ever learn to move on until have got justice and closure on this.
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