Wednesday, 17 April 2013

attended a autism awareness month bash

was at a autism awareness month event yesterday in a huge library in manchester.
had been told about it by someone from SS/learning disability services last week so had to go check it out.

their idea behind it is one which will never understand they called it a living library.
all the people taking part in it [wasnt one of them by the way!] were either young,teen or adult autistic,a specialist of some sort such as SALTs,parents of autistic people,and the other side was represented by any person at all-whether it be some random person taking a nosy after buying books or an autistic person,or a parent,or some pervert off the street who happened to be interested in autism.

we parked in the disabled bay outside the library and was using the wheelchair but some son of bitch in charge of the area construction/ planning had done a whoopsy and forgotten to build a drop kerb,was fully paralysed from the waist down at that time so was not going to be any help.
a very kind man who had been on the other side of the wide street had saw staff struggling and helped them lift us up onto the kerb,so yeah-thanks to that irish man,a local woud never do such a thing.

was wearing the peltor optime III ear defenders and the padded helmet,as was wheeled inside,a gaggle of females looked at self,then looked at each other and burst out into some godawful squeeling and laughter, they woudnt have been laughing if they got a smack in their faces with those ear defenders given the weight of them!  wasnt in the mood for a fight that day was to interested in getting in the lift to this awareness shindig,pity those chavvy girls hadnt walked into the autism awareness event to and develop themselves a bit of understanding.

the room it was in was packed,it was very popular.
em and staff as well as the learning disability pysch who had recommended the event were sat with em and we got to know a guy who has autism,dyslexia and dyspraxia,it was interesting to hear how different he has experienced life in terms of how he has been treated and bullying issues,have never known autists like ourselves who can communicate sentances via any means necessary so it was very nice to hear autism from another view.
was communicating with him via a PECS booklet of mine as the sis had forgotten the proper PECS book at her house last week and only just managed to bring it today.
was having to slowly point to each letter on the booklet,and staff woud speak it,hate using the alphabet to speak out as it is so slow for everyone else to follow,wish had took the netbook instead.

though he isnt involved in the autistic community or forums, have got his email address-he is the first friend have ever had outside of residential care!!

Sunday, 7 April 2013

gaining some freedom in the great outdoors

its sunday and am having to stay an extra night at dads as our place has got no drivers on due to sickness.

dad finaly bought the wheelchair today as well,its a wheeltech enigma XS metalic blue wheelie,its used but its infinitely better quality than a brand new generic cheap wheelie on ebay.
bought it from a company which employs a large number of disabled people on their refurb and sales team,it was actualy one of the reasons had deliberately looked through their store- http://stores.ebay.co.uk/Brighter-Future-Mobility-Equipment?_rdc=1

comes with the extra large cushion seen above.

am finaly going to be able to access the community...no more being left paralysed on the floor from the arch enemy of mine;complete todds paralysis,triggered by severe epilepy and sensory overload.
am really looking forward to gaining some basic freedom instead of having to relie on the car,thats why am a fat bastard....well that and drinking a shit ton of redbull.

Tuesday, 26 March 2013

addicted to a ipad sensory app

borrowed a fellow residents ipad the other night,he has the most basic one as its only used for proloquo2go.
staff put on some sensory and AAC apps-all free!!!  and these are..... well theyre just amazing.

was sat playing with one from afternoon/eve till night time,it is serious sensory seeking stuff and woud recommend it to anyone,still cant work out what its called because a google search for the name on the ipad seems to come up with a load of other shit.

anyway,thanks to the power of this laptop webcam and guvcview,had filmed the app in use;as close up as possible,it looks far,far awesome on screen than in this video and woud recommend everyone autistic or not give it a go because several support staff were addicted to it this evening and theyre as non autistic as people can get.
*click here to display video*
 


now,am in need of a bit of help.
does anyone reading this know a bit about these touch screen tablets?
have been desperate for one since proloquo first went into development but am even more so desperate for one now,and have been shown that android has its fair share of AAC and sensory apps to,so am thinking of getting an android cheapy tablet.

one staff however,has been really negative of these android ones; he says unless are able to get the likes of samsungs nexus then its possible will end up getting one with a shit screen.
am not sure what to think...being a newbie to this technology,he is an apple fanboy and has more money than sense [hell,he is a glory hunter and changes his football team when theyre in the dirt quicker than his underpants which says a lot], so fellow autist and non autists.... please help, are the cheaper android tablets perfectly useable?

am liking the nabi-
http://www.ebuyer.com/414190-nabi-2-tablet-pc-nabi2-nv7a-ukhttp://www.ebuyer.com/414190-nabi-2-tablet-pc-nabi2-nv7a-uk
its designed for youngsters and has a thick rubber casing and can take a real battering off toddlers so that comes in handy, but we found a even cheaper one-
http://www.ebuyer.com/407319-sumvision-cyclone-voyager-tablet-pc-cycvoy7
this is a unknown brand one,the specs kickass and the reviews are very positive,coud get one of these and a good protective case maybe.

what does everyone think?


n/b. havent got the money yet,but this is being planned..other people just dont know that yet.

Monday, 25 March 2013

autism talent

though havent been able to listen to music for years, have come across a new singer/music artiste/artiste/artist? whatever they call em who seems very worthy of rating on TRA.

he is kyle coleman-
http://kylecoleman.co.uk/
a UK based classic autistic; born non verbal but developed full speech as common with most so called HFAs [so called, because am not a fan of how we are lumped into one or the other when human functioning does not work like that],one of the therapies he was given was music therapy,it allowed him to get where he is today with music,he is also supported by the national autistic society though am not sure if that means he is a service user of theirs or not.


please feel free to reply with a story of own experiences,or the websites of any autistic people;eg- if theyre artists,work with animals or do any other form of skill.
am interested in profiling what we can do here,regardless of where we lie on the spectrum or what functioning we get stuck on us based on the same old stereotyping.

abuse against autistic people in care

where is the trades description actt when theyre needed? there is a care agency in america but guess what....there is no care involved,now where have we heard that before? definitely on this blog many times.
itd be more suitable to call it a abuse-and-take-advantage-of-vulnerable-adults agency but that woud be a bit of a mouthful considering they are using those to abuse the shit out of their paying clients.

want to see what am on about?  have a read here-
http://thestir.cafemom.com/in_the_news/152814/hidden_cameras_catch_autistic_man

the man in question is cameron,he is an autistic man with a very limited mental and verbal capacity,he has full time support needs but is able to live in the community/his own home.
this is where jay nolan community services comes in,they are paid to support cameron have the best quality of life possible.
unfortunately that isnt what they did,they disgustingly took advantage of this mans inability to express/communicate and did everything from booting him hard over and over,beating him,spitting at him,stripping him naked and threatening him with an air gun etc,cameron lived in fear for his life every day and was not able to express it.

the parents had began to notice signs of abuse,cameron was showing fear of the staff,so the parents rigged his place with hidden cameras which finaly caught these pyschopathic pricks targeting someone who coudnt fight back on their level,absolute fucking cowards!!

the parents saw the tapes,and reported it,then the agency attempted to break into camerons house to get the tapes and destroy them.
this company needs to be brought down,and every single coward involved in the direct or indirect abuse of their clients be brought to justice.
how dare these wasters be labeled under our species,throw them out with the rest of the rubbish.

hopefuly cameron has not developed a fear/mistrust of staff as a result of this abuse, like mine; which had been caused by severe neglect, physical abuse, mental abuse,sensory abuse and sexual abuse whilst in the last residential service.
unfortunately they tried to blame the autism;saying am to low functioning to understand the reality,though they denied the autism for long enough when it suited them- because was able to turn on a computer.

honestly hope cameron gets a lot of money out of this, and it goes towards helping him build a better life for himself away from these sons of bitches.