there is a imbalance in the online autistic community,and those who are active on wrongplanet will know the opinion of mine on this.
am talking about how those of us under the 'low functioning' spectrum do not have our voices heard enough without others butting in and thinking they speak what we think,plus the divisive,bigoted and at times elitist nature of an autistic community that is naturaly biased towards the high functioning.
this imbalance comes from the fact most in the low spectrum either have always been assumed to be NON functioning and have never been taught how to use a computer OR do not have the mental capacity to communicate language across well enough to use forums,which means the majority of online autistics are high functioning.
so that answers why our views are undersupported in the autistic community,but not why our fellow HFA brothers and sisters are unable to defend us like they defend each other.
lets take that majority group and examine the issue further, why are so many amongst HFAs totaly against the idea of an autism cure and say of the whole autistic spectrum;we are autistic; not a disease,we dont need curing we need support and understanding....BUT,those of us who are low functioning have no qualities,are non functioning and need curing?
why is it a high functioning autist understands that HFA is a HUGE spectrum within itself and all aspies differ in their autistic quality of life plus vary in the size of their support team, but cannot apply that same thinking to LFA?
why is it WE are assumed to be automaticaly in need of a cure? why do so many aspies and parents of autistic children think we are suffering terribly because they apply how they woud deal with our lives and obviously come out with a negative interpretation?
we have different expectations and wants/needs in life compared to HFAs or NTs but that doesnt make our life inferior-it just makes us different.
yes-there are so many things we really coud do with better help with;that dont require kicking an MP up the arse to get any funding to get there,but a cure doesnt help that-its having the autism and autistic communities standing up together and fighting for better understanding,support and funding.
the autistic community needs to be defending EVERYONE on the spectrum-defending every autistics right to live how they want and not be treated as a non functioning burden.
aspies are the closest people to understanding how we feel,and those of us who are LFA who are involved in activism need to be supporting our aspie brothers and sisters to,we dont get anywhere without support.
Showing posts with label Autism Spectrum. Show all posts
Showing posts with label Autism Spectrum. Show all posts
Friday, 28 February 2014
Sunday, 27 January 2013
a rant at the up and coming DSM
something thats been bothering for a while....the arguments in the autistic community against the autism changes in the new DSM manual.
have read reports from various so called experts saying that people with aspergers do not want to be lumped in with those of us who have classic autism.
lumped in....ugh.
firstly what makes them assume those of us who have classic autism want to be 'lumped in' with anyone? what makes them assume we are a bunch incapable of giving our views?
why is it,all these years on,people are still only seeing the spectrum in stereotypes?
sorry to use the terms but they assume those of us on the lower functioning side are totaly incapable; some people think we cannot wipe our own arse,we cant speak at all and we are all fucking clones.
they assume people on the higher functioning side are all able to be independant,all minimaly disabled in their life if at all.
people,especialy people who do not directly experience autism spectrum need to keep quiet and stop saying what we want,and stop trying to creat divisions between people on the spectrum.
am fed up of being unable to fit in online in the autistic community because of these bloody divisions which give people who do not experience more severe autism the completely wrong idea about us,and how we think,and how we live and want things.
and am also bloody fed up with the negative language that is always associated with us when other groups are compared to us,eg; lumped in.
the new DSM criteria isnt saying we are all the same,it isnt saying we are clones, aspies can still refer to themselves as that if they want; it isnt a official diagnosis so no one can take a slang word away.
am hopeful for the long term that this may make the spectrum more inclusive instead of divisive,the seperate autism labels have long caused discrimination, prejudice,disablism and bullying.
come march,that will be a step towards removing all of this bullshit,we need to be supporting one another not making hierarchies where some individuals think theyre better than others just because they have a different autism label.
have read reports from various so called experts saying that people with aspergers do not want to be lumped in with those of us who have classic autism.
lumped in....ugh.
firstly what makes them assume those of us who have classic autism want to be 'lumped in' with anyone? what makes them assume we are a bunch incapable of giving our views?
why is it,all these years on,people are still only seeing the spectrum in stereotypes?
sorry to use the terms but they assume those of us on the lower functioning side are totaly incapable; some people think we cannot wipe our own arse,we cant speak at all and we are all fucking clones.
they assume people on the higher functioning side are all able to be independant,all minimaly disabled in their life if at all.
people,especialy people who do not directly experience autism spectrum need to keep quiet and stop saying what we want,and stop trying to creat divisions between people on the spectrum.
am fed up of being unable to fit in online in the autistic community because of these bloody divisions which give people who do not experience more severe autism the completely wrong idea about us,and how we think,and how we live and want things.
and am also bloody fed up with the negative language that is always associated with us when other groups are compared to us,eg; lumped in.
the new DSM criteria isnt saying we are all the same,it isnt saying we are clones, aspies can still refer to themselves as that if they want; it isnt a official diagnosis so no one can take a slang word away.
am hopeful for the long term that this may make the spectrum more inclusive instead of divisive,the seperate autism labels have long caused discrimination, prejudice,disablism and bullying.
come march,that will be a step towards removing all of this bullshit,we need to be supporting one another not making hierarchies where some individuals think theyre better than others just because they have a different autism label.
Friday, 16 November 2012
depression
this is one thing that dont talk about often but am severely clinicaly depressed with added pyschosis ontop,and unfortunately within the past few weeks at the least the cymbalta has stopped working...mostly.
the depression had been triggered by the severe online bullying had recieved from a particular individual with borderline PD and pyschopathic narcissism if am correct in remembering his original un bullshitted diagnosis list.
the doctor said the pyschosis was due to the depression having been left untreated for so long,the autism has a huge impact on how em experiences it and how its recognised by others.
this week has been the worst,had stolen as many prescription codeine tablets as coud sneak out whilst being brught back home,and necked them all later on.
the week before had also done the same at home making sure no one knew; though they all were having a go because was wanting to go to bed instead of stay up with the nieces of mine,and they also said eyes were badly swollen,luckily they didnt find out.
am desperate to go away.
the overdose this week was unfortunatelty found out as apparently was found out of it on the bed and they had searched trousers and found the empty pack.
they got paramedics out,and the manager came in with one staff to sit with em through this,they did tests and stuff here, but said had to go hospital and that was not going to happen whether under staff or police restraint.
so was not allowed any painkillers from then on because of the amount in system and was also not allowed to take all of the normal tabelts am on in the morning until the doctor phoned up and said it was ok.
they then did a blood test here,havent got a clue what for.
the pyschosis is very bad to plus have got obsessive thoughts which are immoral and violent,the ld pysch of mine thinks the pyschosis side of it is autism related; he thinks because am not able to communicate it; the brain is communicating in another way by halucinations and delusional thoughts,
he has seen many autistic clients whom are doped up to the eye balls on anti pyschotics because theyre in unsafe and unpredictible settings-instead of changing the reasons behind their lack of safety and unpredictibility.
-its why have never been prescribed anti pyschotics as he has put behavioral plans in place instead but the pyschosis has never changed,am just not passing it on to people as much.
had to cancel visit from sister and the nieces this week,despite the fact see them every wensday and also recieve a can of relentless/other cheapo redbull style drinks care of mum and dad which probably says how desperate am being at the moment.
the depression had been triggered by the severe online bullying had recieved from a particular individual with borderline PD and pyschopathic narcissism if am correct in remembering his original un bullshitted diagnosis list.
the doctor said the pyschosis was due to the depression having been left untreated for so long,the autism has a huge impact on how em experiences it and how its recognised by others.
this week has been the worst,had stolen as many prescription codeine tablets as coud sneak out whilst being brught back home,and necked them all later on.
the week before had also done the same at home making sure no one knew; though they all were having a go because was wanting to go to bed instead of stay up with the nieces of mine,and they also said eyes were badly swollen,luckily they didnt find out.
am desperate to go away.
the overdose this week was unfortunatelty found out as apparently was found out of it on the bed and they had searched trousers and found the empty pack.
they got paramedics out,and the manager came in with one staff to sit with em through this,they did tests and stuff here, but said had to go hospital and that was not going to happen whether under staff or police restraint.
so was not allowed any painkillers from then on because of the amount in system and was also not allowed to take all of the normal tabelts am on in the morning until the doctor phoned up and said it was ok.
they then did a blood test here,havent got a clue what for.
the pyschosis is very bad to plus have got obsessive thoughts which are immoral and violent,the ld pysch of mine thinks the pyschosis side of it is autism related; he thinks because am not able to communicate it; the brain is communicating in another way by halucinations and delusional thoughts,
he has seen many autistic clients whom are doped up to the eye balls on anti pyschotics because theyre in unsafe and unpredictible settings-instead of changing the reasons behind their lack of safety and unpredictibility.
-its why have never been prescribed anti pyschotics as he has put behavioral plans in place instead but the pyschosis has never changed,am just not passing it on to people as much.
had to cancel visit from sister and the nieces this week,despite the fact see them every wensday and also recieve a can of relentless/other cheapo redbull style drinks care of mum and dad which probably says how desperate am being at the moment.
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