now this is a real hatred of mine.
as its probably known by any readers of the blog,am completely against the term retarded or the out of date DSM diagnostic label mental retardation.
will face plant palm every time see an aspie or a NT use the terms because they dont understand the near and far consequences retard/mentaly retarded has on someone who is intelectualy disabled.
heres why...............
a]am intelectualy disabled [AKA learning disabled in UK definition] and am directly affected by the godawful and just wrong word.
b]retard is a highly dehumanizing,bigoted,elitist and limiting word that directly affects a group of very vulnerable people whether its being aimed at an NT,a high functioning disabled person or an intelectualy disabled person,its outdated and shoud be in the past with hitler.
c]mental retardation as a label is outdated and no longer in use;it was finaly changed in the DSM manual last year along with the autism changes that were made,but unfortunately a number of americans didnt seem to notice this and carried on calling us mentaly retarded and not intelectualy disabled.
in fact,for the past several years;many american organisations have been swapping to intelectual disability so there was no excuse.
some people who have got no idea have said theres nothing wrong with the label so they wont change their useage; that just shows a massive lack of respect for a group of vulnerable disabled people who in many cases woud not be able to sit here and stick up for themselves on the internet like am doing now.
d]mental retardation as a label is untrue.
those of us with intelectual disability dont have a slow mind we have a limited mental capacity which gives less room for storage of data-this has a knock on effect on our functioning,understanding and learning level. even as adults we have high support needs,significant difficulties with understanding basic concepts, with personal care and toileting, with language and communication,we have no concept of danger, we have difficulty comparing ourselves to others and dont understand differences in people-some of us are unable to discriminate at all which in itself is a gift in society. we lack self awareness of our limited mental capacity; people who think they have ID because they are slower learners/thinkers than others do not have ID;we dont have the capacity to recognise ourselves as limited and to compare ourselves to others in that way to make a judgement, have often seen people say they think they have/or they have ID but are not diagnosed; on the internet,and they will say how difficult they have it,how slow they are,how behind they are etc; that is a whole load of self awareness and social understanding we do not have, people who write stuff like that seem to have low self esteem or seem to crave being patronised and treated as a lower level than they are-those of us who have genuine ID do not feel any borders or limits nor do we like being patronised.
e]just because we have intelectual disability it doesnt mean we cant have smarts,we may be less complex than others in our topics of choice but we can be just as passionate and dedicated about something as anyone else.
f]the use of retard as a slur,towards a bunch of foolish NTs for example is ignorant,childish and discriminative, people who use it as a slur dont seem to realise the term is associated with US, and by calling people retards for doing something foolish they are comparing their behavior to ours, it is sub conciously abusing us-not them,we are the ones who are being compared with people who can help whatever stupid behavior they are doing,please stop associating us with whoever it is; we are neither retards nor the fools doing that behavior.
g]we have intelectual disability,we DO NOT have the mind of a child,those of us who are adults have an adults mind;we spent our whole lives earning adulthood just like everyone else we deserve the same respect; we just have a limited mental capacity [read >d<].
treating us like children in adult bodies is sickening,dehumanizing and so ignorant and prejudiced.
Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts
Monday, 3 March 2014
Wednesday, 19 February 2014
giving a toss for fellow disabled people
was at the manchester protest against ATOS today from early on this morning,there was a load of us there and many journos,heres one photo of some of us,am the one in the manual wheelchair at the end and that is a support staff of mine whilst the other staff waited across the road baby sitting her coffee.
ATOS need to understand we will not take their bullshit any longer, they are killing sick and disabled people with their underhand tactics and quest for comission and we are saying NO MORE.
ATOS need to understand we will not take their bullshit any longer, they are killing sick and disabled people with their underhand tactics and quest for comission and we are saying NO MORE.
Monday, 17 February 2014
attenting a ATOS demonstration
am going to a demonstration against ATOS this month.
ATOS are the bunch of wannabe doctors who assess people for UK sickness and disability benefits, they get comission for finding people fit for work so they have turned benefits into a competitive market.
they have no understanding of complex conditions-learning,developmental,mental,physical, neurological etc,their assessment software is basic tick box stuff and it only applies to simple conditions so very few people get a truly fair assessment.
being a long time service user of residential care have luckily not come across this specific beast yet apart from when they denied the high rate mobility of DLA,saying over and over that high rate mobility is only for severely physicaly disabled people;denying the criteria that states' severe mental impairment with severe behavioral difficulties' and denying the fact was living with a number of people who claimed high rate mobility on that criteria,it took a lot of fucking around by support staff and a tribunal with a pissed off panel who said they cant believe we were strung along and it shoud never have got that far.
know plenty of fellow disabled people who have done including autistics and its absolutely disgusting the treatment they have faced.
for those who are unfamiliar with ATOS,have a read through these-
http://orderoftruth.wordpress.com/tag/atos/
http://atosstories.blogspot.co.uk/
http://ronsrants.wordpress.com/2012/03/29/the-truth-about-how-were-deprived-of-benefits-from-inside-atos/
ATOS are the bunch of wannabe doctors who assess people for UK sickness and disability benefits, they get comission for finding people fit for work so they have turned benefits into a competitive market.
they have no understanding of complex conditions-learning,developmental,mental,physical, neurological etc,their assessment software is basic tick box stuff and it only applies to simple conditions so very few people get a truly fair assessment.
being a long time service user of residential care have luckily not come across this specific beast yet apart from when they denied the high rate mobility of DLA,saying over and over that high rate mobility is only for severely physicaly disabled people;denying the criteria that states' severe mental impairment with severe behavioral difficulties' and denying the fact was living with a number of people who claimed high rate mobility on that criteria,it took a lot of fucking around by support staff and a tribunal with a pissed off panel who said they cant believe we were strung along and it shoud never have got that far.
know plenty of fellow disabled people who have done including autistics and its absolutely disgusting the treatment they have faced.
for those who are unfamiliar with ATOS,have a read through these-
http://orderoftruth.wordpress.com/tag/atos/
http://atosstories.blogspot.co.uk/
http://ronsrants.wordpress.com/2012/03/29/the-truth-about-how-were-deprived-of-benefits-from-inside-atos/
Sunday, 7 April 2013
gaining some freedom in the great outdoors
its sunday and am having to stay an extra night at dads as our place has got no drivers on due to sickness.
dad finaly bought the wheelchair today as well,its a wheeltech enigma XS metalic blue wheelie,its used but its infinitely better quality than a brand new generic cheap wheelie on ebay.
bought it from a company which employs a large number of disabled people on their refurb and sales team,it was actualy one of the reasons had deliberately looked through their store- http://stores.ebay.co.uk/Brighter-Future-Mobility-Equipment?_rdc=1
comes with the extra large cushion seen above.
am finaly going to be able to access the community...no more being left paralysed on the floor from the arch enemy of mine;complete todds paralysis,triggered by severe epilepy and sensory overload.
am really looking forward to gaining some basic freedom instead of having to relie on the car,thats why am a fat bastard....well that and drinking a shit ton of redbull.
dad finaly bought the wheelchair today as well,its a wheeltech enigma XS metalic blue wheelie,its used but its infinitely better quality than a brand new generic cheap wheelie on ebay.
bought it from a company which employs a large number of disabled people on their refurb and sales team,it was actualy one of the reasons had deliberately looked through their store- http://stores.ebay.co.uk/Brighter-Future-Mobility-Equipment?_rdc=1
am finaly going to be able to access the community...no more being left paralysed on the floor from the arch enemy of mine;complete todds paralysis,triggered by severe epilepy and sensory overload.
am really looking forward to gaining some basic freedom instead of having to relie on the car,thats why am a fat bastard....well that and drinking a shit ton of redbull.
Saturday, 3 November 2012
the tragedy that is disability
tragedy-
please stop feeding this mindset to autistic and non autistic kids and adults that autism in any severity is a tragedy.
some of us grew up being resented on a daily basis due to our level of autism and lack of support or education for parents,mine used their fists and anything they coud grab hold of to beat every autistic and learning disabled trait,difficulty and behavior,regulary outloud said they wished had not been born,or was like more sister,was made out to be nothing but a lifelong burden to them by the ever useless doctors,whom had told mum only brain damage caused autism.
all of their tragic attitudes rubbed off on em throughout entire life,felt was useless and people around em were only to quick to highlight that.
mum and dad had no idea em was aware of their discusions on a possible childrens home placement.
was made to feel like the tragedy of the family,the one they piled resentment on and hate because was not intelectualy or school wise on the level with sister plus she never was any trouble at school she was just socialy impaired and shy.
it wasnt until em was in the residential services am in now that the mentality of mine changed,these guys to be specific[link to ems incubation project page,its out of date as they said theres no webspace left]- *click here*
it isnt that believed coudnt do anything but that had believed was worthless and useless and didnt deserve to be here because had caused so much suffering to the family.
the residential centre am in over the past few years has helped work on re programming that thinking.
they also have taught the family am not a tragedy,am not a stain on the families good streak.
most importantly they have helped self to accept self instead of loathe and by christ that was an achievement.
they have helped em to understand own autism and how it affects others on the severe and profound spectrums of autism to,without this understanding woud not be even near aware of how deeply it affects others and it is this why understand so many parents think we all have to fit one stereotype or another to match their idea of what definition shoud be.
the problem that thinking of us as a tragedy causes is exactly what have just wroten above,it creates such an embedded self loathing mentality and possibly depresion for the autistic who has enough awareness of language;and both deep resentment,hatred,self loathing and depresion for the parent.
just because we are born differently to the wishes of the parent,doesnt mean we cannot have a life which is comfortable,acceptable and interesting to us, it does not mean we cannot have a quality of life.
every profoundly autistic em know in this residential centre has a high quality of life.
the adult profoundly autists both have a job once a week,they even attend a mainstream [UK] FE college.
one of them is even able to use normal public transport no problem,and they both access the mainstream community.
with the right support,clear boundaries in place,sensory integration and behavioral issues worked on, chances to communicate easily and understanding and a safe supportive but independance encouraging place to live in; autistics can have a great life,there is no tragedy to our lives or condition,the only tragedy is the serious abuse some of us have recieved [and unfortunately for some will stil] in care......
....the lack of understanding,the lack of coping with us leading to some autists being spoilt all their lives and thinking they own everything......
.....the autists who are completely aware that theyre using violence to control others......
....the people who target us/manipulate us/groom us and bully us online because of our level of autism they see us as weak whilst thinking theyre 'hard' for bullying and predatarily targeting a very vulnerable adult......
....the legal lack of benefits to survive on when we live in residential care..... ........the lack of understanding off our shitty govnernment who continuously shuts down day services for us and leaving many stuk in the house because they cannot work,cutting funding on special education courses for us not to mention some years ago when they removed all funding all together for people over twenty five going to special colleges...........
.......cutting social services funding so they had to get rid of people who didnt meet the highest level of critical needs which has left vulnerable people without care.......
now THAT is a tragedy.
THAT is a tragedy we need to cure.
-see our real tragedy is other people!
-our tragedy is the media and its inability to make people aware of autism without portraying it as a kids disability or a tragedy on mankind.
-our tragedy is having organisations whom are biased towards ideas such as cure representing us,they dont give a stuff about our voice either and think even those of us with severe or profound autism need our parents to represent us.
-our tragedy is these biased organisations portraying autism as a kids disease to get more donations coming in,most of which goes on cure research AND NOT supporting the autistics who exist today and are struggling to survive.
-our tragedy is the lack of basic respect,rights,advocacy, and human equality that those of us with severe or profound autism get from the autistic community, isolating us when they develop advocacy or autism spectrum forums,or when theyre standing up for the spectrum.
-our tragedy is the autism and autistic communities arguing between each other about what autism is and "how their kid is more autistic and disabled than some other kid and how people in the autistic community dont represent their child because theyre able to use a computer and type",instead of getting together and campaigning for better awareness and understanding against the REAL problem-the bastard disablist governments of our countries.
the tragic element of drama, of literature generally, or of life.
please stop feeding this mindset to autistic and non autistic kids and adults that autism in any severity is a tragedy.
some of us grew up being resented on a daily basis due to our level of autism and lack of support or education for parents,mine used their fists and anything they coud grab hold of to beat every autistic and learning disabled trait,difficulty and behavior,regulary outloud said they wished had not been born,or was like more sister,was made out to be nothing but a lifelong burden to them by the ever useless doctors,whom had told mum only brain damage caused autism.
all of their tragic attitudes rubbed off on em throughout entire life,felt was useless and people around em were only to quick to highlight that.
mum and dad had no idea em was aware of their discusions on a possible childrens home placement.
was made to feel like the tragedy of the family,the one they piled resentment on and hate because was not intelectualy or school wise on the level with sister plus she never was any trouble at school she was just socialy impaired and shy.
it wasnt until em was in the residential services am in now that the mentality of mine changed,these guys to be specific[link to ems incubation project page,its out of date as they said theres no webspace left]- *click here*
it isnt that believed coudnt do anything but that had believed was worthless and useless and didnt deserve to be here because had caused so much suffering to the family.
the residential centre am in over the past few years has helped work on re programming that thinking.
they also have taught the family am not a tragedy,am not a stain on the families good streak.
most importantly they have helped self to accept self instead of loathe and by christ that was an achievement.
they have helped em to understand own autism and how it affects others on the severe and profound spectrums of autism to,without this understanding woud not be even near aware of how deeply it affects others and it is this why understand so many parents think we all have to fit one stereotype or another to match their idea of what definition shoud be.
the problem that thinking of us as a tragedy causes is exactly what have just wroten above,it creates such an embedded self loathing mentality and possibly depresion for the autistic who has enough awareness of language;and both deep resentment,hatred,self loathing and depresion for the parent.
just because we are born differently to the wishes of the parent,doesnt mean we cannot have a life which is comfortable,acceptable and interesting to us, it does not mean we cannot have a quality of life.
every profoundly autistic em know in this residential centre has a high quality of life.
the adult profoundly autists both have a job once a week,they even attend a mainstream [UK] FE college.
one of them is even able to use normal public transport no problem,and they both access the mainstream community.
with the right support,clear boundaries in place,sensory integration and behavioral issues worked on, chances to communicate easily and understanding and a safe supportive but independance encouraging place to live in; autistics can have a great life,there is no tragedy to our lives or condition,the only tragedy is the serious abuse some of us have recieved [and unfortunately for some will stil] in care......
....the lack of understanding,the lack of coping with us leading to some autists being spoilt all their lives and thinking they own everything......
.....the autists who are completely aware that theyre using violence to control others......
....the people who target us/manipulate us/groom us and bully us online because of our level of autism they see us as weak whilst thinking theyre 'hard' for bullying and predatarily targeting a very vulnerable adult......
....the legal lack of benefits to survive on when we live in residential care..... ........the lack of understanding off our shitty govnernment who continuously shuts down day services for us and leaving many stuk in the house because they cannot work,cutting funding on special education courses for us not to mention some years ago when they removed all funding all together for people over twenty five going to special colleges...........
.......cutting social services funding so they had to get rid of people who didnt meet the highest level of critical needs which has left vulnerable people without care.......
now THAT is a tragedy.
THAT is a tragedy we need to cure.
-see our real tragedy is other people!
-our tragedy is the media and its inability to make people aware of autism without portraying it as a kids disability or a tragedy on mankind.
-our tragedy is having organisations whom are biased towards ideas such as cure representing us,they dont give a stuff about our voice either and think even those of us with severe or profound autism need our parents to represent us.
-our tragedy is these biased organisations portraying autism as a kids disease to get more donations coming in,most of which goes on cure research AND NOT supporting the autistics who exist today and are struggling to survive.
-our tragedy is the lack of basic respect,rights,advocacy, and human equality that those of us with severe or profound autism get from the autistic community, isolating us when they develop advocacy or autism spectrum forums,or when theyre standing up for the spectrum.
-our tragedy is the autism and autistic communities arguing between each other about what autism is and "how their kid is more autistic and disabled than some other kid and how people in the autistic community dont represent their child because theyre able to use a computer and type",instead of getting together and campaigning for better awareness and understanding against the REAL problem-the bastard disablist governments of our countries.
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