was being eaten by the niece today [sunday].
she came to visit with her ma and pa and was in a unusualy good mood despite her first tooth having come through.
like a vampire she pretended she wanted a hug or whatever but it was actualy to nom some flesh,she tried anything her little mouth coud get around,sister took loads of pics-
^she loves dancing and being supported to 'walk' across the floor and she kept trying to nom everything as seen in those photos,even the fringy bits did not escape nor the camera.
-shoud also say,orla seems to be keen on horse riding already which is a very good sign.
had got down on hands and knees for her on the floor and dad held orla on back like she was riding a horse,she did changing the diaganals and all that flatwork stuff,impressive rider-am definitely taking her for real rides as soon as she is allowed heheheheheheh.hope her ma doesnt see this...well she knows what think on this.
Sunday, 4 September 2011
disability equipment-whoever prices these needs sacking for fraud
it is so hard understanding why companies which make disability equipment [in particular those that make autism and learning disability equipment] charge a lot of money- usualy making them inacessible to those whose lives coud be hugely improved by the equipment.
if anything,equipment shoud be cheaper because those that make use of aids/equipment,ie disabled people with high needs- have very little left to spend from their disability benefits due to it paying for their their care,and then there are those of us who are stupidly refused most benefits due to being in residential care-and any we do have goes towards paying for our placement and petrol for our motability car if we have one.
it is absolutley disgusting that this government feels it is ok to fund equipment for people with physical or sensory disabilities-such as wheel chairs,hearing aids and crutches for example,because people with physical or hearing difficulty or physical needs need those aids to have quality of life,however the government does not fund ear defenders,sound proofing or AAC communicative aids which not having profoundly affects many of us with autism-these have a big impact on our lives and everyone around us,not just quality of life-they improve and affect so much.
the government shoud get hold of the papers they have the disability discrimination act written on and shove it up their arses because they pick and choose what they want to avoid discrimination against and that is not a discrimination act,its a biased piece of crap.
thanks to our speech therapist [am guessing are reading this because everyone from ours seems to get hold of the bloody thing] we had recently [ie,this week] become a temperary home to a liberator AAC device- it was more for one of our lads who is unable to communicate useable verbal language at all.
anyone who knows self online or offline will probably know had personaly tried to get one [the possum jive] via the local government a few years ago-this was a reasonable priced device but had found out our stingy council does not fund AAC devices,and now possum have stopped making AAC equipment due to all this funding loss.
am not fully non verbal but am partly non verbal,and woud be greatly helped with a pocket AAC device-being partly non verbal was not the reason for being refused the funding,they woud refuse someone who had no useable verbal language,perhaps thats their way at saying they are not being discriminative.
anyway,those of us interested have all had a go of it-the device is huge and heavier than a full sized laptop but it boots quickly when compared to a laptop,am not sure what battery life is like,the adapter for charging that device is huge though.
had taken a photo of it one night whilst sat in the lounge,trying to keep staff busy so they forgot time and didnt send em to bed early,though have had to brighten it up in GIMP because its really dark in lounge.
-was making it swear a lot to test it,it past the swearing test,have never used any text to speech software before which coud manage so many words,though on PCs-maybe the windows SAPI engine had something to do with its lack of recognition,even the linux espeak/festival engine gets more words right.
its fucking awesome.
if everyone was rich woud tell everyone who has autism or has a child with autism to buy one of these as it encourages the user to use more language if they have the ability,if not they will only recognise the pictures-but its a great bit of kit,just a pity we arent all rich.
it has PECS pictures to trigger the machine to speak or can type words out to trigger the speech [AKA text to speech].
the guy that is hopefuly getting it took to it straight away,can tell it will help him so much.
unfortunately though,was toldd the machine costs far to much-to be exact they said the price of a car and our guy is going to have to have a organisation do fund raising for him [providing he is approved by this org as they probably get alot of requests] and it coud take a year or whatever for him to get the device.
-had looked into us doing fundraising for him but was told because we are under a company and not a charity status organisation,we are not aloud to fundraise which is shit.
had said what about Proloquo2go and an iphone or ipad-that is the AAC software for the iphone and ipad that had often posted on here about being close to buying prior to release,but it was found out [not by self,speech therapist did all the work-she knew about the software already] that the developers dont give free trials for people to have a go and see if it suits their needs.
its aimed at people with autism/LD and they shoud realise that we are not frigging clones who will be able to do or not do,or like/not like the same things.
next week,we has a lady from dynavox coming with another AAC,was really hoping to get a go of it as am a big fan of dynavox but had forgotten at the time she is coming am going to be at mums/dads, speech therapist said she will take pictures of it in use [if reading this,please do,woud love to see it in use].
if anything,equipment shoud be cheaper because those that make use of aids/equipment,ie disabled people with high needs- have very little left to spend from their disability benefits due to it paying for their their care,and then there are those of us who are stupidly refused most benefits due to being in residential care-and any we do have goes towards paying for our placement and petrol for our motability car if we have one.
it is absolutley disgusting that this government feels it is ok to fund equipment for people with physical or sensory disabilities-such as wheel chairs,hearing aids and crutches for example,because people with physical or hearing difficulty or physical needs need those aids to have quality of life,however the government does not fund ear defenders,sound proofing or AAC communicative aids which not having profoundly affects many of us with autism-these have a big impact on our lives and everyone around us,not just quality of life-they improve and affect so much.
the government shoud get hold of the papers they have the disability discrimination act written on and shove it up their arses because they pick and choose what they want to avoid discrimination against and that is not a discrimination act,its a biased piece of crap.
thanks to our speech therapist [am guessing are reading this because everyone from ours seems to get hold of the bloody thing] we had recently [ie,this week] become a temperary home to a liberator AAC device- it was more for one of our lads who is unable to communicate useable verbal language at all.
anyone who knows self online or offline will probably know had personaly tried to get one [the possum jive] via the local government a few years ago-this was a reasonable priced device but had found out our stingy council does not fund AAC devices,and now possum have stopped making AAC equipment due to all this funding loss.
am not fully non verbal but am partly non verbal,and woud be greatly helped with a pocket AAC device-being partly non verbal was not the reason for being refused the funding,they woud refuse someone who had no useable verbal language,perhaps thats their way at saying they are not being discriminative.
anyway,those of us interested have all had a go of it-the device is huge and heavier than a full sized laptop but it boots quickly when compared to a laptop,am not sure what battery life is like,the adapter for charging that device is huge though.
had taken a photo of it one night whilst sat in the lounge,trying to keep staff busy so they forgot time and didnt send em to bed early,though have had to brighten it up in GIMP because its really dark in lounge.
-was making it swear a lot to test it,it past the swearing test,have never used any text to speech software before which coud manage so many words,though on PCs-maybe the windows SAPI engine had something to do with its lack of recognition,even the linux espeak/festival engine gets more words right.
its fucking awesome.
if everyone was rich woud tell everyone who has autism or has a child with autism to buy one of these as it encourages the user to use more language if they have the ability,if not they will only recognise the pictures-but its a great bit of kit,just a pity we arent all rich.
it has PECS pictures to trigger the machine to speak or can type words out to trigger the speech [AKA text to speech].
the guy that is hopefuly getting it took to it straight away,can tell it will help him so much.
unfortunately though,was toldd the machine costs far to much-to be exact they said the price of a car and our guy is going to have to have a organisation do fund raising for him [providing he is approved by this org as they probably get alot of requests] and it coud take a year or whatever for him to get the device.
-had looked into us doing fundraising for him but was told because we are under a company and not a charity status organisation,we are not aloud to fundraise which is shit.
had said what about Proloquo2go and an iphone or ipad-that is the AAC software for the iphone and ipad that had often posted on here about being close to buying prior to release,but it was found out [not by self,speech therapist did all the work-she knew about the software already] that the developers dont give free trials for people to have a go and see if it suits their needs.
its aimed at people with autism/LD and they shoud realise that we are not frigging clones who will be able to do or not do,or like/not like the same things.
next week,we has a lady from dynavox coming with another AAC,was really hoping to get a go of it as am a big fan of dynavox but had forgotten at the time she is coming am going to be at mums/dads, speech therapist said she will take pictures of it in use [if reading this,please do,woud love to see it in use].
Saturday, 20 August 2011
DIY chemistry for the win
am not coping at all with head at the moment,have been desperately wanting to escape it [before anyone am known by translates that to mean-fed up of living at home,no,nothing to do with that], fucking local social services funding panel though is a different matter.
ugh,fucking hate them,they have got no fucking idea what its like to be stuck in bedroom every day,day after day,seeing the same walls with fuck all to do...
unable to get out the house due to the local funding panel here cutting the maximum amount given to each person in residential.
am unable to get out with the group because of the lifelong routine change that has to now be done due to the new risk assessment.it isnt that am being stopped by anyone else but because of it being such a attached routine change its impossible.
so this weekend,whilst am at mums,had decided to try and get drugged up somehow to blur what is going on in head.
the only things have got access to doing this with are mums over the counter co codamols which she refuses to get them for free [being a pensioner] because she doesnt like her gps.
had saw she had alot of trays left and took one,but realised will just end up feeling sick if take them all because of the paracetemol in them.
had remember back to the days of the old great forum TOTSE when people were always describing their experiences with a cold water extraction.
had looked up a easy picture tutorial on making almost pure codeine from cocodamol,and got perfect results.
everything was finaly settled and calm in head,it was clear,was able to properly think again.
was not feeling sick and shitty due to having extracted the paracetemol first.
this isnt a regular thing,if anything it says just how desperate head is feeling to want to take purer opiates.
sister is a councilor and woud get totaly lectured and disowned off her if she found out what had done as she is one of those people who wont even touch alcohol or anything else for fear of becoming adicted to it.
this is what had used to do it:
-though something had used to mash some pills up and the freezer are not shown of course.
the kx tin there [its tescos version of redbull,cheaper and nicer] was mixed with the stuff at the end because of course it tasted bitter but that was nothing compared to ensure liquid.
ugh,fucking hate them,they have got no fucking idea what its like to be stuck in bedroom every day,day after day,seeing the same walls with fuck all to do...
unable to get out the house due to the local funding panel here cutting the maximum amount given to each person in residential.
am unable to get out with the group because of the lifelong routine change that has to now be done due to the new risk assessment.it isnt that am being stopped by anyone else but because of it being such a attached routine change its impossible.
so this weekend,whilst am at mums,had decided to try and get drugged up somehow to blur what is going on in head.
the only things have got access to doing this with are mums over the counter co codamols which she refuses to get them for free [being a pensioner] because she doesnt like her gps.
had saw she had alot of trays left and took one,but realised will just end up feeling sick if take them all because of the paracetemol in them.
had remember back to the days of the old great forum TOTSE when people were always describing their experiences with a cold water extraction.
had looked up a easy picture tutorial on making almost pure codeine from cocodamol,and got perfect results.
everything was finaly settled and calm in head,it was clear,was able to properly think again.
was not feeling sick and shitty due to having extracted the paracetemol first.
this isnt a regular thing,if anything it says just how desperate head is feeling to want to take purer opiates.
sister is a councilor and woud get totaly lectured and disowned off her if she found out what had done as she is one of those people who wont even touch alcohol or anything else for fear of becoming adicted to it.
this is what had used to do it:
-though something had used to mash some pills up and the freezer are not shown of course.
the kx tin there [its tescos version of redbull,cheaper and nicer] was mixed with the stuff at the end because of course it tasted bitter but that was nothing compared to ensure liquid.
Friday, 12 August 2011
the autism spectrum and jobs
had been reading a forum today [nothing to do with disabilities] and noticed there were a number of people saying they had an ASD and cannot work,whether these users were genuine and not the same persons multi accounting habit as am led to believe due to the usual warning signs; is besides the point there are a lot of autistic spectrum people online who think like this.
the fact is,many people with any of the main forms of autism can eventualy get a job of some sort, whether paid or voluntary.
autistics shoudnt think they are unable to work through their autism,am living with decent guys who happen to have severe and profound traditional low functioning autism and another who is like self except with less understanding of the world-they all have a small voluntary job contributing to the community which is pretty awesome as a lot of people without disabilities sit on their arses at home all day,using their unemployment for modern technology,drugs and other luxuries.
autistics at any level can be capable of working with the right support and the right job,and those who are mildly affected by their ASD with minimal if any support or complex needs are the most able of all to aim for it,its often this group that thinks their ASD stops them from working.
leo kanner,the founder of the first research into autism [classic] always said autistics had a high chance of working if they have a job that focuses on their interest/abilities.
people need to believe in themselves and stop seeing their diagnosis labels and stereotypes,
never believe what the stereotypes of labels say,only believe in self.
its like with parents of low functioning autistics thinking they will stay the same way forever, they do not realise if they are allowed to develop,and are given the support along with a job they will have interest in-they to coud be working on some level-have already mentioned several examples above.
am hoping to eventualy work towards voluntary grooming and mucking out horses,but have a lot of issues which currently put a stop to it,some of them being due to not getting the outdoor funding,which means woud not be able to do any sort of helping out unless go with someone who gets the funding-which is pointless because those who do get the funding woudnt do that sort of work,they only get the funding as they are from a better borough which isnt fair and am fed up of this unequal shit.
it just doesnt make sense,we get a shit ton of people in the UK who dont want to work but are perfectly able to; eating up unemployment benefits,but those of us in registered residential care here who want to help out in some way are being stopped from working by social services/ learning disability services due to not getting the outdoor funding.
theyre a bunch of muppets who run the government.
anyway,point being...
autistics-of all severities and functioning levels,dont look at self as being broken or unable to do things,always look for different ways around barriers and never assume are useless.
the fact is,many people with any of the main forms of autism can eventualy get a job of some sort, whether paid or voluntary.
autistics shoudnt think they are unable to work through their autism,am living with decent guys who happen to have severe and profound traditional low functioning autism and another who is like self except with less understanding of the world-they all have a small voluntary job contributing to the community which is pretty awesome as a lot of people without disabilities sit on their arses at home all day,using their unemployment for modern technology,drugs and other luxuries.
autistics at any level can be capable of working with the right support and the right job,and those who are mildly affected by their ASD with minimal if any support or complex needs are the most able of all to aim for it,its often this group that thinks their ASD stops them from working.
leo kanner,the founder of the first research into autism [classic] always said autistics had a high chance of working if they have a job that focuses on their interest/abilities.
people need to believe in themselves and stop seeing their diagnosis labels and stereotypes,
never believe what the stereotypes of labels say,only believe in self.
its like with parents of low functioning autistics thinking they will stay the same way forever, they do not realise if they are allowed to develop,and are given the support along with a job they will have interest in-they to coud be working on some level-have already mentioned several examples above.
am hoping to eventualy work towards voluntary grooming and mucking out horses,but have a lot of issues which currently put a stop to it,some of them being due to not getting the outdoor funding,which means woud not be able to do any sort of helping out unless go with someone who gets the funding-which is pointless because those who do get the funding woudnt do that sort of work,they only get the funding as they are from a better borough which isnt fair and am fed up of this unequal shit.
it just doesnt make sense,we get a shit ton of people in the UK who dont want to work but are perfectly able to; eating up unemployment benefits,but those of us in registered residential care here who want to help out in some way are being stopped from working by social services/ learning disability services due to not getting the outdoor funding.
theyre a bunch of muppets who run the government.
anyway,point being...
autistics-of all severities and functioning levels,dont look at self as being broken or unable to do things,always look for different ways around barriers and never assume are useless.
Sunday, 7 August 2011
no more cock fighting in the garden
henny and spikey [was told thats what hennys new chuckmate is called] have been in their egglu together for a while now and poor spikey has been bullied and plucked of a lot of feathers by henny for stepping into her territory,henny was the weak bullied one when ethel and penny were with her.
so on friday had looked at their egglu and realised both of them were napping together on the ground when the new chuck chuck wasnt even allowed out into the pen by henny before that.
had planned hennys old favourite treat with staff-all cooked peas,sweetcorn and rice mixed and thrown in,and we gave it to them-both henny and new chuck were being like best friends together whereas it was always a nasty battle with each other when it was henny/penny/ethel.
this is the new chuck,day after she was dropped off or something like that.
even so she was quite friendly then.
here they are being pals,they know something nice is coming for them...
dey be gettin ready for the drop...
henny-deciding which food type she is going to neck first.
eating together.
-chickens are great pets,woud recommend them to anyone.
if they are tame they can like being held in arms just watching everything go by, henny is like a dog with certain people who give her alot of attention even though she is an ex battery hen and think the new chuck is going to be very friendly as she has come from our farm and is already used to lots of people.
have been showing mum/dad pictures for ages,and pictures of the pen and stuff and information on urban chicken keeping,mum wants them but dad comes up with an excuse against everything.
so on friday had looked at their egglu and realised both of them were napping together on the ground when the new chuck chuck wasnt even allowed out into the pen by henny before that.
had planned hennys old favourite treat with staff-all cooked peas,sweetcorn and rice mixed and thrown in,and we gave it to them-both henny and new chuck were being like best friends together whereas it was always a nasty battle with each other when it was henny/penny/ethel.
even so she was quite friendly then.
-chickens are great pets,woud recommend them to anyone.
if they are tame they can like being held in arms just watching everything go by, henny is like a dog with certain people who give her alot of attention even though she is an ex battery hen and think the new chuck is going to be very friendly as she has come from our farm and is already used to lots of people.
have been showing mum/dad pictures for ages,and pictures of the pen and stuff and information on urban chicken keeping,mum wants them but dad comes up with an excuse against everything.
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