some photos of a sting ray and poisonous frogs

was at blue planet aquraium on friday,and managed to get some photos with the tablet even though it was dark.

 sting ray photobombing

 frog stuck to glass,sleeping.

being LFA and against the idea of personaly having a 'cure'

am pretty disapointed.
it seems am completely ignored by parents whenever have wrote am against the idea of the whole concept of a autism cure on self;am not against others having the choice or a best interest decision by their specialists and profesionals made in their favour if they have no mental capacity to make the decision themselves.
they go on to write as if they havent even read the posts of mine when am often campaigning for our view to be heard, they say their child is LFA,that LFAs cannot state how 'they' feel and its not something that shoud be lived with and shoud be cured-as if theyre blanking the fact am a living breathing LFA posting in front of them,they dont want to take in opinions that differ to their own nor accept that some of us are actualy able to communicate well in text form.


people say they wish their son/daughter/people with LFA coud speak and tell them what theyre thinking but when one does they blank it out of their minds.
people are still using LFA as a throw back to meaning just profound autism and a description of someone with total lack of communication and the most complex severity of autism known to man,LFA is a spectrum just like HFA and we are affected very differently-the only thing we all share is that we all have some level of intelectual disability and this is what makes our autism present the way it does.
someone with extremely complex profound or severe autism will have severe intelectual disability on top,mine is mild so the severe autism appears differently to severely autistic people with much worse ID.

am completely against a cure of self,because have lived a life as a severely disabled person, have developed experiences and thoughts and interests based on the way am today, woud not be the same person or have the same strengths and qualities that have now if it wasnt for being this person.
am also acutely against the idea of change and woud never accept something that means change, and nor woud everyone else with severe or profound autism who have good support and specialist equipment tailored to their needs available to them,change to us is like a dog chasing a cat,we will run as fast as we can or we will stand there and fight it-we wont let it happen.

am feeling not good that am not able to be understood by many parents of severely autistic kids as always thought they woud be allies against the sea of ignorance and misunderstanding that recieve in the autistic community.
please parents;please prove this wrong and sympathise with what am saying.

am very sympathetic of parents,mine are still affected by the disabilities of mine even though have not lived there in many,many years,mum is severely depressed;something she developed when em was five years old and she wasnt able to cope any longer,her religeon disowned her and blamed her for having a child posessed by the devil,the doctors had said she had a severely disturbed child who needed punishing,including for the non verbalism.
yes it is very hard for parents to cope with our needs and difficulties especialy when they lack the support and knowledge,but we can have good quality of lives and improve greatly with the right medications,the right support staffing behind us,the right secure environment,the specialist equipment,supportive and encouraging therapies etc.

as adults away from the family home we tend to develop much better friendships with our families, had never recognised dad as 'dad' until a few years ago,still dont ever use it though apart from online.
am just wishing to be understood,it is hard to feel good when are misjudged by the autism community and the autistic community.

managing a basic lifeskill

today,had gone to the cinema to see the purge;anarchy, awesome film woud recommend any thriller fans to see it.

but had also done something meaningful and something am pretty damn proud of,most people wont see it as a big goal but then it has to be remembered we are on different levels.
-staff made a roast dinner for mum and dad today and self/em had cut the potatoes before being put in to the pan to boil by staff.
am proud,no matter what other people think.

mum was drunk when we dropped the dinner off,but she stood there nibbling away at it saying how gorgeous it was and 'amazin grace' over and over,think she liked it. ;)

the challenges of severe autism;needing behavior friendly furniture

have been after a brand of furniture for years;called 'tough furniture',they make furniture for people with severe challenging behavior.
we had a corner cabinet made by them in the lounge of the last residential home but was told it was to expensive for a resident to buy for their own room,have always been unable to have tv/games consoles in bedroom because had smashed every one had had.

am unable to have a normal bedroom and because of behaviors live in whats called a low stimulous clinical setting.

thanks to being in a supported living care home rather than residential care am now able to afford tough furniture through back pay or saving,but yesterday thanks to a certain area manager from bolton who knew am waiting to buy a TF wall mounting or floor standing TV and games console cabinet with back pay, put a call out internaly in the support company and found out the company has got a number of mint condition TF cabinets stored away at their HQ.
so we went along today to check it out and imediately bought it,it only costed ten pounds when even second hand/slightly used it woud cost hundreds in a external/mainstream arrangement,am very very greatful.

heres some photos of the cabinet [its upside down by the way], the black tray at the top pulls out and stores things,the tv and xbox three sixty will go in there [once have managed to source a damn power brick plug,got another HDMI cable and got a game pad for it]

with doors shut;

with doors open;

moving onto next phase,a behavior friendly chair.
had had a small sofa put in bedroom when moved in but ended up trashing it along with everything else so it was all removed,a single seat of some unbreakable kind woud be better,its ridiculous that these special needs companies charge so much to buy stuff,taking advantage of the most vulnerable.

attended a cinema for the first time

and it went amazingly well actualy.
yesterday/tuesday afternoon,went to an odeon cinema to watch how to train your dragon 2 with two support staff.
have never been to the cinema before,but had got a CEA card- https://www.ceacard.co.uk/
before going which allowed support staff to go in for free,however as common with most companies; it seems they only recognise disabled people who have one support staff and not two, as only one was able to get in for free and had to pay for them which isnt fair because they are there to support self not there to specificaly watch a film.

had had a lot of haliperidol before the film so was able to cope with the cinema.
they showed lots of good trailers and woud recommend to everyone to watch out for 'paddington' which is out at christmas aparently, it looks amazing,its about padington bear but has slightly rude bits in it to so it isnt just for children.

the film itself was awesome,one of the staff went to sleep and snored through half of it,her face looked like one of those persian cats-and the other staff cried through it all plus we both laughed at the other staffs sleeping face.

am a huge HTTYD fan;have got the first film and the TV series;riders of berk on dvd and have got toys to,and a computer game,am specialy a fan of toothless because he is very cat like,and have also got a A2 size poster of toothless and hiccup.
heres one of the toys of mine;

looking forward to many more trips to the cinema.